clinic appointments

We had a couple of trips to primary in the past week. One was last week to the dermetologist, which was a waste of a four hour drive, didn't tell me anything I didn't already know. On tuesday our regular visit went really well. We still have to go down every two weeks until her tapper is over in aug. but she looks awesome. We still put on creams gallor, but tappering so far hasn't caused a flare up. This morning I had a big scare, Rhen had gotten on the table to where chloe had taken her pills, opened them up and ate some prograf (transplant anti-rejection pills) and some acyclophere (an antibiotic). I was crying and so worried, I called poison control and after some checking and giving him the the dosage that he took, he said that he didn't think he took enough to hurt him. Luckily, he took the smaller dose of prograf and not the bigger one. Thank goodness for poison control!! The man was so nice and understanding of my crying on the phone. When they called back two hours later, and he was playing and having fun. He does have major runny poop though. All I can think of is tender mercies!!

love the imagination

Elsie has the biggest imagination I know. Last night when Jake went to tuck her into bed she was kicking back on her bed (well the mattress that is on the floor, for another post) holding a pretend remote for a tv. She was pointing it to her Jesus picture on the wall. When Jake came in the room she hurried and (pretended) to click it. Jake asked what she was doing and she said I was watching tv and it was on an immodest channel so I had to click it back to the Jesus channel.

the tapper is on!!

Hilary (her nurse practitioner nurse) was so glad to see the progression the new cream has had on chloe's rash. So we got the tapper schedule on the Prograff pill (which is an anti-rejection pill) and will be done in the middle of August (we are hoping nothing prevents the taper). So we are hoping school in the fall!! OH MAN, she was so excited about that (prayers are answered)! She will still be on her steroids, but it is such a small dose that is can be tappered off in two weeks. I asked about waiting the few months being off the meds to go to school and it seemed no big deal to him. So I am hoping we don't hear another story when we go next time because we happen to see another doctor. That is one of the frustrating things with this is that one doctor will have an opinion about how we should be cautious and then the next time we see another doctor who doesn't think things are a big deal, example, last visit Jake was told no to camping, today we saw another doctor and he asked if we had plans for this summer and I look at him like, are you really asking me this? I told him that she can't do much, but he seemed to think camping would be fine if we are cautious and have a trailer. So go figure. We will just use our best judgement, I guess. We had a good clinic visit today!!

all boy

Rhen loves to eat markers, baby shampo, toilet cleaner, dirt, chapstick, glue and everytime I go to get it from him he laughs and runs. He has figured out that it is a lot more fun to be outside than inside, here he is at play...

Anything that comes out of Rhen's mouth whether it be comprehensible, or not ends with the word ball. He loves balls and is entertained by them for hours. He has the cutest fish face while he eats the chapstick. He walks around digging his finger in the chapstick sucking on his finger and then walks around with his cheeks sucked in.

He is learning how to drive, his dad wants him to start early so when it comes time to take the fj rock crawling, he is ready!

pinewood durby for girls...sweet!

Addie and Chloe were pretty excited when they were able to participate in the derby in activity days. They had a fun time racing their cars, both chloe and addie won a race or two. Addie got most original, her sweet ballerina shoe, and chloe's was a cute duck! Looks pretty life like!

Chloe update: with the help of prayers and the new creams we got, her rash is 90% gone!!! She looks so smooth and soft!! We are excited to hear in a week or so if she can start her taper!!