Monday, February 4, 2008

slow and steady wins the race.

A pair of Benjamins. ANC is up from 100 to 200 today, white blood cells up to 600. Keep on keepin' on Chlo.

Sunday, February 3, 2008

this is why daughters are so precious.

Chloe was listening to some songs getting ready for bed and I just had to record a little. She's been singing for about an hour now and she has the sweetest little voice. You'll want to turn up the sound...

Sisters 4ever.

I don't think Addie realizes how much her little sister loves her. Mom or Dad can call and Chloe doesn't usually have much to say. But when big sister calls they can talk and talk about what Addie did at school, who she has been playing with, who Chloe's nurses are and on and on. She perked right up last night when she got on the phone with Addie. She likes to talk to Elsie too, but strangly enough Elsie has a short attention span on the phone.

She has an ANC of 100 today and white blood cells are still 400. We'll see how tomorrow goes. The doctor told her today that if she will start eating the can switch her engraftment med to a pill and remove her picc line. That was some motiviation for her to start eating i guess. She ate a bowl of cereal this morning and some scooby snacks. I can tell she is fighting it though. She hasn't really had any food for about 3 weeks now so she's not used to it and kinda has to force it down. Her Plateletts were low again today so she had another transfusion. Looks like she will probably get a red blood cell transfusion tomorrow. Hopefully her counts will continue to rise.

Enjoy the super bowl everyone. I'd make a prediction if I could remember who is playing. What was it Green Bay and someone? I guess I'll go out on a limb and bet Green Bay loses. They are kind of a cheesy team anyway.

Saturday, February 2, 2008

Huntsman Cancer Institute

We have mentioned before in our blog how impressive the Huntsman Cancer Institute was when Chloe had to have her treatments there. Tonight as she and I hung out we were watching (to her dismay) the Glenn Beck show because he was interviewing Jon Huntsman Sr. It was an interesting interview explaining a little bit about Mr. Huntsman's history and what he has done to promote cancer research. I have to say I was impressed so I though I'd include a link here if anyone is interested.

Radio Interview

Videos - News

snow...woman


Addie and Elsie went outside to play, when they came back in they told me to go look at the snowman they made. I went and looked out my bedroom window and I said, does it have boobies? And Addie said Yea it is a snow woman! Funny girls.

Better than when she wasn't as good.

Chloe is up to a 400 white blood cell count today! She still has no ANC which is the marker they are looking for that indicates full engraftment. The ANC needs to be 500 for a few days. Hopefully as the white blood cells continue to go up, the ANC will follow. She is still having some stomach pain, but at least he bloody noses are much less frequent, her rashes are gone and the mouth sores are gone too. We just need to get her to eat something, anything at all.

Lapse in Judgement

We quickly realized that we made a mistake yesterday by making the blog private. Its not really a good idea to close it up 4 months after word spreads and people become regulars. I guess we didn't realize how many friends, neighbors, family and their friends, neighbors and parents check up on Chloe until we started getting emails wondering what happened. Sorry folks.

I know Chloe is someone I want to be like, maybe reading about what she is going through will help someone else too. Thanks for all the support all y'all.




now, if Microsoft can just realize their error and do something to fix Windows Vista. Am I alone on this one?

for sure brother and sister!

I found this picture of Elsie and thought 'holy cow that looks like a face that Rhen makes', and although she is chubbier than he is cause she is older they have the same expression. Sooo cute! Now I don't know if he will take on her same personality and getting into mischief but if he is we are in for some trouble!!

little picasso

Addie drew this picture and was so proud of it saying she can't keep her eyes off of it. So I took a picture of it to show you all how grown up she is getting and what a good little artist she is! All my girls love art and they all have different styles and colors they like. It is fun to see the differences they do. Addie likes to be exact, chloe just takes her time, and elsie doesn't care to use colors that aren't exactly right for the picture, like she will paint or color a girls hair with one strip pink one strip green and color her face purple (can you say contemporary)! They are great!

Friday, February 1, 2008

friday

Chloe is doing better today. Her counts are still at 300. The doctor thinks she should be fully engrafted within a week or so. So we just have to wait and see how she does. After she is fully engrafted we can move out of our 100 SF room to a small apartment for a couple of months that will feel huge.

Today I ate roast beef, Chloe had none.