a word I don't like

Cancer.
It seems the word is being used more and more often. My heart breaks when I hear news of someone else getting it, or having it return. Tears come often when I think of the ones in hospitals around the world fighting and fighting. I wish I could ease their pain. Our fight was hard and I know the word will always be in our life because we have fought it twice, and I say we because even though Chloe was the real fighter, it is a family ordeal, we all fought for her, but I hope it remains in the past. I know through experience a little prayer will go along way. So as you read this take a moment to say a prayer for those who have to deal with this scary, uncertain, life changing word.
I have been thinking about this word a lot lately. Chloe's D day was this month. 03/04/05. I am not the same person I was before that life changing day, I have learned lessons I would not have learned other wise and I am stronger than I ever thought I was. So these stories I have heard recently of getting the cancer word coming into their life for the first time or again, my heart goes out to them, and I hope they are strengthened.

Layla's blessing day

I found her beautiful dress on etsy and the lady is here in Logan. She is so talented and makes all sorts of different items. It was so fun to dress her up and take pictures. She was beautiful, and we had fun having all our family here at our house to celebrate. After 5 years of not being able to have a big celebration at our house, it was very fun for us. We are so thankful to all those who traveled a long way to celebrate this with us!!

As you can see she loves to stick out her tongue it seems to be a toy for her. She sticks it out, brings it back in and rolls it around her lips.

Zzzzzzzzzzzzzzzz...

I wish there were blogs for all my kids when they were younger.

just a little note to help me remember Layla's milestones (cause I tend to forget details). Layla has slept 8 hours two nights in a row! The first night I was thinking well it is just one night, but last night I had to go wake her up after 8 hours. I feel so rested.

Messy

Rhen's been working very hard today to keep our house consistent with his hairstyle he created himself with some paste. If you don't beleive me come and see the straggly lines he's drawn on the basement walls, staircase, doors, casing and fresh this morning... marker all over the tile in the shower.

for grandma e

They grow so fast and I am not liking it, I want her, and all my kids stay little forever, but so is life to grow up. So I must take lots of pictures. Here are some for grandma england, who lives far away and doesn't get to see Layla very much, and I must say she is stinkin cute.

Sweet Layla we love you

ps we got her tummy/reflux issue's resolved and she is so better and slept all day yesterday and is fast asleep right now in her carseat, her chubby cheeks and double chin and all!!

Benny and Joon

This weekend Jake and I got to relax on the couch a bit and saw a show on TV was on we hadn't seen since we dated. I love this show and it was fun to watch it again and see the funny styles back in the day. I love that it is quirky and different. I forgot how much I liked it, so it was fun to remember.
Johnny Depp (sam) is hired to be Mary Stewart Mastersons (joon) shmail (?) or in other words house keeper/ babysitter. They are out eating at a diner one day and here is how the scene goes. love it.

Sam: You don't like raisins?
Joon: Not really.
Sam: Why?
Joon: They used to be fat and juicy and now they're twisted. They had their lives stolen. Well, they taste sweet, but really they're just humiliated grapes. I can't say I am a big supporter of the raisin council.
Sam: Did you see those, those raisins on TV? The ones that sing and dance and stuff?
Joon: They scare me.
Sam: Yeah me too
Joon: It's sick. The commercial people they make them sing and dance so people will eat them.
Sam: It's a shame about raisins.
Joon: Cannibals.
Sam: Yeah. Do you like avocados?
Joon: They're a fruit you know.
Sam: Ruthie, do you got any avocados?

never a dull moment

I was wondering yesterday why Rhen's poop was green, bright play dough green. Today I found out why, Rhen ate a green crayon, or two. A big chunk of green crayon was in his diaper today. And going down the stairs on the wall is his artwork. His medium, pencil. We have another Elsie on our hands

clinic

Better news than we thought. Even though it is a flare up of GVHD, her tapper won't be so long and drawn out. They said she needs to get off the steriods so it will be a weekly tapper not monthly (whew). I am so glad! I don't know what to do about the loss of hair. Maybe it will just grow back in? I hope so.

a chocolate day

The night of Layla sleeping well and reflux under control was short lived. I am taking her into the doctor tommorow to figure out was is going on with her tummy. Today she would not nap or let me put her down until now and it is 7:00 pm. She is finally in snooze land (yay). Both her and Rhen woke up at 5:00 this morning and wouldn't go back to sleep. So needless to say the day didn't start out well. I have noticed Chloe's hair has been thinning, and it has concerned me for sometime, well two days ago she woke up and I was doing her hair and I noticed it is getting worse. Jake noticed it as well. And the other night she complained of mouth pain (which could be mouth sores). I saw sores but they weren't white like they usually are. Well I decided I better call the docs. The unwelcome GVHD is back-dang it. And the rash is back. We are to up her steriods instead of tapper. BUMMER is an understatement. I was told to make an appointment so they can see her, so a poke is scheduled on fri. She is not excited. I was depressed, she was so close be going of all her meds. So just when I went to get one of the ever so delightful Lindor dark chocolates I realized Layla doesn't do well with chocolate .*sigh*


ps... make it a chocolate week. Yesterday I went to Ross to use a credit I had and Rhen threw the biggest fit ever, I left in tears. He wouldn't let me hold him and twice he fell to the ground and hit his head once in the store and once in the parking lot. He would not walk or let me carry him. He would lay on the gross floor and scream. His new thing spitting when he is mad. So not only is he screaming uncontrolably he has spit running down his face and on to his jacket. The crying is making his nose run, so he is screaming, has spit all over and snot is running into his mouth. I had Layla in her stroller so I didn't have a cart. I didn't expect my sweet little boy to have this sort of melt down. He did say mid scream that he wanted a nap, and I thought, a ya think? Welcome to the two's.