I'm tagged

So I am suppose to tell 7 qwirks about myself (that shouldn't be a problem:).

1. Sometimes I talk as if I know what I am talking about(certain words, topics of conversation and math). Sometimes I honestly think I am saying things right, but I'm really not.

2. I make it a challenge to get all dishes in the sink, in the dishwasher. It is like a competition for me. I sometimes rearrange for Jake or Addie so I can get more in!

3. I don't like to unload the dishwasher, I like to load (the #2 reason is why).

4. I love to rearrange furniture all the time. I think we have dismantled the girls bunkbeds more that jake has wanted. BTW jake I think it is time to not have bunkbeds anymore :).

5. If I am reading a good book, I can't stop until I am done and everything else goes to pot (hense the fact that I read the twilight series in 5 days, I was in the hospital with chlo up until the 3rd book).

6. I get stressed when my kids don't get enough sleep and won't nap

7. I am a little messy and sometimes scatterbrained.

Ricky

Yes it's true, I have some sinus issues in the fall. But so did Ricky and he was a cool cat. Don't tease me about it or I will tell mother.



If that makes no sense to you, it's time to rent "Better off Dead." Or don't, whatever.

Clinic

We had clinic yesterday and it went awesome!! I have been extra worried about her getting sick this week, which I don't know why, maybe being cautious, but I have learned to trust my gut feeling when it comes to this disease but she is doing really well and her numbers were good and we now can go every other week! She is feeling good and looking good so it helps me not to worry so much, but now starts cool season.
We got her steroid tapper which is over not until june. Because it is chronic GVHD they have to tapper really slow, it is harder to get rid of. But I am glad to start the tapper.
The school is still trying to work on the webcam. I was hoping to have it going by now but hopefully soon. Eva Honey, a nice lady in our neighborhood, comes on mondays to teach her grammar and math, which I am so greatful for.
We just hang out at home and I do a little school stuff and crafts with her to help the day go by. She loves to play with Rhen. Addie loves school, she likes her new teacher and tells us she is liking math now cause her teacher explains it in a way that she understands. Elsie likes school and says she doesn't get into trouble but I can't wait to go to parent/teacher so then I can hear how she really is. With my other kids I could go in and help to see how they acted in class, and really didn't have to worry about Addie and Chloe, but now when I need to see Elsie in class and I can't so I am wondering about her energy in class. Rhen amry crawls all over the place and has a smile on is face always. This is my favorite time of the year so I am enjoying the scenery. Jake doesn't like this time of year, because of his allergies. This is when he gets it the worst and he can't breathe. So he hasn't found anything that works, even the *netty pot won't break up the congestion. We don't know what else to do all the extra strength stuff works for only 4 hours in stead of 12. Poor guy. I am glad that after I got pregnant with Addie my allergies went away, but that wouldn't quite work for Jake though.

*netty pot, a small white tea pot looking thing you put water and medicine in. You put the spout in one nose and pour the water in and the water comes out the other nose, breaking the congestion out. :)

We had to move our clinic appointment to yesterday because on sunday morning she had a reaction to her iv medication and got hives all over and her throat was tightening. We were told just to come a day earlier than scheduled so they could check her out.
They gave her a dose of the drug there and she did fine (guess is was just a one time deal). It was a long day there. Other than that she is doing good and she can try having milk now (yay). We also asked the Doc about halloween and with much persuasion, Chloe can go trick or treating to some houses this year. We have to incorporate her mask into her costume though. She was glad about that.
I also took Rhen, who was fine for the first two hours there but the next three hours it was hard to keep him entertained. He did fall asleep for 15 minutes. I think he has flashbacks of when he was a newborn when he comes to the hospital :) and why he isn't a heavy sleeper, I just don't know. You would think that having a sister as Elsie you would sleep through anything but not so.
Clinic day is always exhausting so I am so thankful for the dinner brought to us on this day!

split

Well our ward split. It was time, with almost 600 people in the same ward it was about time, but I wasn't prepare to not be in the same ward as many of my friends we have made here. Yeah it is true that we can see them down the street but like one neighbor said, "you might as well live in another county."Plus for me that is the only place I saw people.
We are in the 12th ward, and we are excited to have some friends already there and some friends that are on our couple of blocks radius to come with us, I will always have a place in my heart for the Providence 3rd, for the friendships I have made and for all the help given through hard times in our family throughout these three and 1/2 years. We just want to say thank you to all in the old Providence 3rd ward for all you did for our family!

spence is 24, living in CV is decent.

Spence turned 24 yesterday. He wanted to hit the hills for a little adventure on his Bday so I was lucky enough to go along. We decided its nice to live in the Rocky's where 15 minutes from home you can stand on a ledge atop a mountain and see views like this. Thats Spence, pretending he is Hanna Montana. He's a big fan.

9/11

September 11th is a day most of us will never forget. Last year we were given a whole new reason to remember it. Last year, after spending the night at the ER for tests, the next morning [9/11] in Salt Lake doctors confirmed that cancer was back for round 2. We were devastated and so was Chloe. She's had a tough year spending almost 1/2 of it away from home. We've had tons of help from lots of people and we thank you all for it.

When we were driving down to Primary to get her tested to see why her arm was hurting so bad I realized it was 9/11 and I told Jake right as I realized it that it isn't going to be good news, but in the same breath I thought, this cancer just needs a little more kick to get rid of and then she will be fine. We were told it was everywhere(except for the spine). The doctor left the room, the lights were turned off and we shut the door and all we could do is cry. We sat there for 15 minutes, tears in my eyes, Jakes eyes and Chloe's eyes. I looked at her with her scared facial expression and told her we are a team and we are going to get through this.
Here a few pics of her amazing strength! We love you chloe!!

postings are sparse.

We just haven't had much happening around here so there is nothing much to blog about. Today Chloe had another clinic appointment down in SLC. She had to get an antibody infusion so we were there for a few hours. She had a little reaction to it, but she recovered like a champ. She is feeling pretty well now and the Docs have been impressed with how quickly the steroids cleared up the GVHD in her gut. We were also quite happy about that.

Somehow we always manage to hit traffic down in the Centerville area on the way home. Doesn't matter what time we leave the hospital, we hit it every time. However, they finally finished construction on the freeway through the Ogden area which has improved the driving experience through Weber county. Chloe and I were pleased. Davis county is still really lame.

Addie and Elsie are loving school. Elsie says recess is her favorite, go figure. Addie is a little sad because our ward got too big and split. Now most of the girls that she saw at church are in a different ward. Rhen loves smiling, eating cookies and throwing food on the floor from his high chair. Stacie's been reading lots of books lately and doing the usual painting and redecorating the stuff that she previously redecorated. I'm starting to think that maybe she's become an instructor at the Center for Kids that Can't Read Good and Want to Learn to do Other Stuff Good Too.

numbers are my nemesis

I was trying to get Elsie to eat all her food so we were arguing back and forth. We're probably the only parents that have to do that. She wanted to eat just 5 more bites, I said all of it.
"6 bites?" she says?
nope, all of it.
"10 Bites?"
No, you need to eat all of it Elsie, it's really good.
"10 big bites?"
Just take 12 big bites and it will be all gone.

"Tuwelve? Thats not even a real number Dad!"

clinic appointment today

Chlo, Rhen and I spent the day at clinic, it was short appointment and we got out of there fast which is always nice.
She has a little GVHD in her mouth. Last night she had some serious pain in her throat, a spazm they called it which hurt her really bad and she also had a big fat lip, which is also because of the GVHD. They went away thank goodness. She didn't like that. She is doing better, but when they start to tapper off the drugs over the next six months (for the GVHD) they can tell us more if it is gone or not. Sometimes it lasts awhile they said. She is super immune compromised with all this new stuff so we are to be very cautious. Her nurse joked that she won't take her PICC line out until she is married, cause everytime we take it out she gets something new :).
One of her favorite friends at the hospital, Mike, gave her a webkinz today, she had talked to him about them last week in the hospital, but he said they were all gone, but he saw her name on the schedule today and had to get her one now that they had some more. That was so nice, she was excited. A lion, that she named, Ashgen.