Tuesday, May 13, 2008
It could be better...but it could be worse
There are more signs of GVHD for chlo-pie. So we have to go down once a week to keep an eye on it. At today's apt they checked her levels, and they are elevated a bit so we need to keep her on her liver medicine, which she was so hoping to get off of but she can't. She lost some weight and won't eat hardly anything. That is also a sign of GVHD, loss of apetite. So before they get her on steriods, which the nurse practioner wanted to do because of her levels, the doctor wants to try a medicine that simulates her appetite. She has been on it before when she lost her 10 pounds in the begining and it worked then so hopefully it will work. Steriods just aren't fun. Although it was frustrating news we are hopefull that it won't elevate even more. Her counts are low so we are keeping her inside, bummer, just when the weather turns nice. Addie was sweet today and stayed in and played with her when she could've gone out to play.
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2 comments:
Hopefully this is just a little bump in the road. She's been having so much fun just being a little girl again. I hope things return to normal soon.
MOM
Chloe,
I'm sorry you feel cruddy! I hope you can feel better soon. We love you!
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