Well it is GVHD. They have four stages of it and she is at stage 2. She has some sores on her stomach and closer to her rectum she has some white bloods cells eating away at the folds on the wall of it. That is what GVHD is. It sounds gross and I am not very good at explaining things, so sorry. I showed her the pictures of her stomachoscopy and she said gross!
She will start on low dose steroids, and be on a clear liquid diet for at least a week. So although GVHD is scary,but it could be worse than it is. She can at least drink something and not totally off food. She was pretty sad about that but more so cause someone is telling her another thing that she can't do. Cause to be honest, she doesn't eat THAT much when we are here anyway.
We have had fun reading and painting. Her spirits are pretty good considering. She was really excited that she didn't have to be poked this morning.
She gets her first dose of predisone right now through her IV. She will have to get her PICC line back in, because they want to do liquid steriods, since it is a low dose. It sounds like we will be here at least another week. They want to make sure her poop is formed before she goes home (again, sorry chlo for having to say so much about your bathroom situation).
2 comments:
Poor girl!! That just makes me so sad! For one thing, a liquid diet for a week! An adult couldn't handle that. She is definitely one brave little girl. A lot tougher than I could be. Let her know we are thinking of her and hope you can get home soon!
Man, Chloe! That sucks! I hope it goes away fast so you can go back home. We sure love you!
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