the tapper is on!!

Hilary (her nurse practitioner nurse) was so glad to see the progression the new cream has had on chloe's rash. So we got the tapper schedule on the Prograff pill (which is an anti-rejection pill) and will be done in the middle of August (we are hoping nothing prevents the taper). So we are hoping school in the fall!! OH MAN, she was so excited about that (prayers are answered)! She will still be on her steroids, but it is such a small dose that is can be tappered off in two weeks. I asked about waiting the few months being off the meds to go to school and it seemed no big deal to him. So I am hoping we don't hear another story when we go next time because we happen to see another doctor. That is one of the frustrating things with this is that one doctor will have an opinion about how we should be cautious and then the next time we see another doctor who doesn't think things are a big deal, example, last visit Jake was told no to camping, today we saw another doctor and he asked if we had plans for this summer and I look at him like, are you really asking me this? I told him that she can't do much, but he seemed to think camping would be fine if we are cautious and have a trailer. So go figure. We will just use our best judgement, I guess. We had a good clinic visit today!!